Dementia Golden Ticket


                            “The Golden Ticket gave me my life back. I can go out and be myself.                             I have a totally different life.”

Transforming care for dementia patients

A pilot project commissioned by HWLH CCG and run by Buxted Medical Centre is transforming care for people with dementia. The Golden Ticket delivers a holistic mix of services to address health and wellbeing, supporting people with dementia and their carers in every aspect of their lives. Evaluation of the project shows that it is already reducing GP visits and emergency admissions to hospital. People who said that they had previously felt isolated received support to live more independently.

The CCG commissioned the pilot in response to a clinical review of dementia services which highlighted delays in receiving a diagnosis, limited access to services and limited choice, poor patient outcomes and the strain on carers.

For the pilot, several organisations worked together to provide seamless care, including primary care, hospital services, councils and voluntary organisations. It included social activities, such as a Dementia Café, and a direct point of contact with the practice nurse. Key to the project were the Golden Ticket guides, from the charity Know Dementia, who acted as the main point of contact for patients and carers. The guides provided emotional support and practical advice while helping people access agencies that could provide support.

People who joined the Golden Ticket reported that their experience was better than before.  They felt more secure with access to the Golden Ticket Guide and the wellbeing activities were something to look forward to.  The community that built up around the project, and the volunteers and peer support have benefitted people’s quality of life significantly.

The Dementia Cafe and the dementia guides have already been commissioned for Buxted and the wider locality, and in the coming year we will consider the practicalities of rolling them out to the rest of the CCG area.

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The CCG has supported Know Dementia to set up five new Memory Moments Cafés at: Buxted, Peacehaven, Lewes, Uckfield and Crowborough. Everyone is welcome, especially those with memory problems and their family supporter. Memory Moments Cafés provide FREE support for persons living with a dementia and their carers enhancing well-being through advice, information and activity. Some of the aims of the Cafés are to provide an opportunity to chat, to develop carer support networks and offer information and advice to those living with a dementia and their carers. 

Memory Moment Cafés will be held weekly at: 

Uckfield

Buxted

Peacehaven,

Lewes,

Crowborough

The Civic Centre, Bellfarm Lane,

TN22 1AE

 

Buxted Inn,

High street, Buxted

TN22 4LA

 

Meridian Centre, Meridian Way, Peacehaven

BN10 8BB

 

Symons Hall in Ringmer Village Hall, Lewes Road, Ringmer

BN8 5QH 

Crowborough Community Centre, Pine Grove

TN6 1FE

 

Every Monday,

1.30-4.30pm

Every Tuesday

9.30am-12.30pm

Every Friday,

9.30-12.30pm

Every Thursday,

9.30am-12.30pm

Every Friday, 

1.15-4.15pm


If you would like to attend or find out more about your local Memory Moments Café please contact Know Dementia by phoning 01273 494300 or emailing: info@knowdementia.co.uk

Since then end of the Golden Ticket Pilot, December 2016, the CCG has been working to roll-out a new model of care. The Golden Ticket ‘Dementia Guide’ role was identified as a key part of this pathway and during the pilot stage this role was developed.

The specific aim of the Dementia Guide is to be the main point of contact and provide appropriate support, guidance and information to meet the needs of each person diagnosed with dementia and their family.  It was identified that, in order to ensure improvements in quality of life for those affected, a single point of contact to help identify areas of concern was necessary as access to the right information at the right time would have the most positive impact for families.  The Dementia Guide therefore is providing the signposting and enabling access to services that promote well-being, care and support for a person diagnosed with dementia and their carer/supporter.

The Dementia Advisor Service, provided by Alzheimer’s Society will end Monday 30th September and the Dementia Guide Service will commence Tuesday 1st October 2016. The Dementia Guide Service, will be delivered by East Sussex County Council's Carers Breaks & Engagement Team as part of their wider role in supporting people living with dementia and their carers and those with other long term conditions and complex needs.

 The Dementia Guide Service can offer:

  • Contact within two working days for all referrals following a dementia diagnosis
  • Face to face visits within 10 working days
  • Information, advice and support to people diagnosed with dementia and their carers
  • Completion of Advanced Care Plans
  • Access to local community activities and services
  • Annual practice updates and attendance at annual primary care reviews
  • Assistance in setting up respite for carer’s own healthcare appointments
  • Access to social care and assistive technologies
  • Carers assessments

 

Exclusions

This service is not able to:

  • Directly meet any personal care needs
  • Undertake moving and handling
  • Directly provide transport to community activities or healthcare appointments

 

For more information you can visit NHS Choices to read more about:


Other useful websites:


Dementia Film by Health Education England

Please find information below to a short film commissioned by Health Education England that covers raising awareness about dementia in the African –Caribbean community and encouraging people to seek early diagnosis:

Finding Patience’ opens the door for health and care professionals to start talking about cultural sensitivities that may result in a reluctance to come forward and talk about dementia concerns. It aims to encourage health and care professionals to break down barriers in order to reach people who may otherwise go undiagnosed or struggle in isolation to provide care within family units.

Aligning to tier 1 dementia training, ‘Finding Patience’ supports a culturally appropriate approach to the dementia pathway, supporting better awareness, early diagnosis and improved person centred care. 

Sharing Best Practice

The Golden Ticket has been recognised both nationally and internationally:

  1. The Golden Ticket Pilot won Gold in 'Partnership in practice', awarded for effective partnership working across groups, within an integrated team, with patients and carers, other teams or organisation. 
  2. The Golden Ticket also won Silver in the 'Team' Category. Awarded for teams which have made an outstanding contribution to the work of the Trust and the service we provide to patients, a team which goes 'the extra mile' to improve services provided directly to patients or in support of clinical services and one that demonstrates continuous improvement.

The Dementia Golden Ticket has also been presented at 
  1. King's Fund,  2015 
  2. 6th International Carers Conference, Gothenburg, Sweden- Care and Caring Future proofing the new demographics
  3. The Health Foundation, March 2016
  4. Annual conference of Alzheimer's Disease International (AD) Congress 2017, Kyoto (Japan)

  5.  Alzheimer Europe Conference – Care Today, Cure Tomorrow, Berlin, 03 October 2017


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